More info on Government Programs Here
Shriners is NOT a government-funded program. Shriners is a private organization that raises it's own donations to provide health care to children with disabilities. Shriners has a network of hospitals throughout the United States and the world providing some of the most cutting edge health care available.
Children are accepted at Shriners if, in the opinion of the medical professionals there, the child could benefit from their services. All services are 100% free - regardless of the family's ability to pay.
Shriners' Mission
Locations of Shriners Hospitals
How to Apply
You may apply through your local Shriners organization or fill out an application online.
Online Application
Showing posts with label Support. Show all posts
Showing posts with label Support. Show all posts
Thursday, April 7, 2011
Saturday, July 4, 2009
Nebraska: Support by City
GOTHENBURG, NEBRASKA
Suzie Wahlgren
rosssuzie2@hotmail.com
my son Grant has SB. I am willing to be contacted by whoever I might be able to help.
Suzie Wahlgren
rosssuzie2@hotmail.com
my son Grant has SB. I am willing to be contacted by whoever I might be able to help.
Tuesday, June 30, 2009
Programs Operating in Multiple States
4 Paws for Ability Service Dogs
Do you know of a disabled person who needs a service dog? 4 Paws for Abilities has few restrictions for acceptance and works with most families within the boundaries of our organization's ability to train and place the type of dog needed. We say "yes" when many more traditional assistance dog placement agencies say "no."
Canine Companions for Independence
The most advanced technology capable of transforming the lives of people with disabilities has a cold nose and a warm heart. Canine Companions for Independence® provides highly-trained assistance dogs for children and adults with disabilities, free of charge.
Do you know of a disabled person who needs a service dog? 4 Paws for Abilities has few restrictions for acceptance and works with most families within the boundaries of our organization's ability to train and place the type of dog needed. We say "yes" when many more traditional assistance dog placement agencies say "no."
Canine Companions for Independence
The most advanced technology capable of transforming the lives of people with disabilities has a cold nose and a warm heart. Canine Companions for Independence® provides highly-trained assistance dogs for children and adults with disabilities, free of charge.
Free, personalized websites that support and connect loved ones during critical illness, treatment and recovery.
Music is one of the most powerful influences of our emotions and subconscious. With over 100 songs to choose from, your child will absolutely benefit over and over. Click on any CD below and choose your child's name to hear for yourself.
KEEN is a national, nonprofit volunteer-led organization that provides one-to-one recreational opportunities for children and young adults with mental and physical disabilities at no cost to their families and caregivers. KEEN's mission is to foster the self-esteem, confidence, skills and talents of its athletes through non-competitive activities, allowing young people facing even the most significant challenges to meet their individual goals.
Matches a professional photographers with special needs families free of charge
Offering people with SCI on both the West and East Coast the opportunity to surf
Publications
Magazine produced by the United Spinal Association
Magazine produced by the SBAA
Complex Child is a monthly online magazine written primarily by parents of children with special healthcare needs and disabilities. It is intended to provide medical information, along with personal experiences, in simple language that other parents can understand.
Living with SB
Mount Sinai Health and Wellness Series
Topics include: Healthy Eating and Weight Management / Exercise and Sports & Recreation
/ “The True Nature of Intimacy” by Gary Karp / Intimacy and Sexuality after SCI: Male and Female Panels / “Freeing Minds, Opening Hearts and Igniting Action” by Scott Chesney /Reinventing Yourself after SCI
Topics include: Healthy Eating and Weight Management / Exercise and Sports & Recreation
/ “The True Nature of Intimacy” by Gary Karp / Intimacy and Sexuality after SCI: Male and Female Panels / “Freeing Minds, Opening Hearts and Igniting Action” by Scott Chesney /Reinventing Yourself after SCI
Tips and tricks for life in general from people with spinal cord injuries
Online Chats
If you know of an active and vibrant online chat for people effected by SB, please e-mail the link to matthew.m.linden@gmail.com
Spina Bifida Kids at Babycenter.com
Daily Strength
Another bulliten board where expectant parents as well as parents of young children with SB can go for parent-to-parent support, encouragement and information
Spina Bifida Kids at Babycenter.com
A bulliten board where expectant parents as well as parents of young children with SB can go for parent-to-parent support, encouragement and information
Daily Strength
Another bulliten board where expectant parents as well as parents of young children with SB can go for parent-to-parent support, encouragement and information
CafeMom
Our children are special and beautiful and sometimes what they have to go through is scary. They are our inspiration and our happiness. Their appointments and medical issues can be overwhemling, and although every child is different, we have a lot in common. Come and ease your mind at similar experiences shared by other Moms of these exceptional children.
Our children are special and beautiful and sometimes what they have to go through is scary. They are our inspiration and our happiness. Their appointments and medical issues can be overwhemling, and although every child is different, we have a lot in common. Come and ease your mind at similar experiences shared by other Moms of these exceptional children.
There are many SB-related goups on Yahoo - just go to Yahoo Groups and type in "Spina Bifida" in the search bar. One of the main SB Groups is Spina Bifida Central.
There are many SB-related goups on Facebook - just go to Facebook, set up an free account and type in "Spina Bifida" in the search bar
Disaboom is a website dedicated to connecting people with disabilities.
Sunday, June 28, 2009
Saturday, June 27, 2009
Customized Music for Your Little One
I Was Born To Win has a collection of inspirational children's music customized with your child's name IN THE SONGS.
Friday, June 26, 2009
Thursday, June 25, 2009
Texas: Support by City
UPCOMING EVENTS AND PROGRAMS
AUSTIN, TEXAS
Adrienne Trigg
scottandadrienne@aol.com
Hayden L5-S1, VP shunt, Chari II/IV (2/24/09)
www.texastriggs.blogspot.com
MIDLAND, TEXAS
Lacy Williams
llwilliams8@grandecom.net
Lacy, Mom to Madison(10), Gage(4), and Autumn(9/22/08) w/SB (L4,L5), shunt, AC II Malformation w/central apnea, trach & vent and one of the greatest joys in my life!!!
www.autumn.haleydean.com
www.lacywilliamsfamily.blogspot.com
AUSTIN, TEXAS
Adrienne Trigg
scottandadrienne@aol.com
Hayden L5-S1, VP shunt, Chari II/IV (2/24/09)
www.texastriggs.blogspot.com
MIDLAND, TEXAS
Lacy Williams
llwilliams8@grandecom.net
Lacy, Mom to Madison(10), Gage(4), and Autumn(9/22/08) w/SB (L4,L5), shunt, AC II Malformation w/central apnea, trach & vent and one of the greatest joys in my life!!!
www.autumn.haleydean.com
www.lacywilliamsfamily.blogspot.com
Wednesday, June 24, 2009
Pennsylvania: Support by City
UPCOMING EVENTS AND PROGRAMS
Elkland, Pennsylvania
Erica Hoke
reekienjaymo@yahoo.com
Mother of Roman Abel- 9 weeks, L2-L5, VP shunt, possible ACMII and a vascular ring (not sure if the VR is related to SB or not..)
Elkland, Pennsylvania
Erica Hoke
reekienjaymo@yahoo.com
Mother of Roman Abel- 9 weeks, L2-L5, VP shunt, possible ACMII and a vascular ring (not sure if the VR is related to SB or not..)
Louisiana: Support by City
UPCOMING EVENTS AND PROGRAMS
NATCHITOCHES
Mariann and Chris Wilson
mariannwilson@bellsouth.net
Sons Jack and Woody (twins; both with SB around L4/5; born 3/9/09; VP shunts; no cathing yet
www.facebook.com/mariann.wilson
NATCHITOCHES
Mariann and Chris Wilson
mariannwilson@bellsouth.net
Sons Jack and Woody (twins; both with SB around L4/5; born 3/9/09; VP shunts; no cathing yet
www.facebook.com/mariann.wilson
Wisconsin: Support by City
UPCOMING EVENTS AND PROGRAMS
MILWAUKEE
Amy Berg
mymurphdog@yahoo.com
Charlie was born 4/30/09 S2-S4, VP shunt with our first revision scheduled for tomorrow:( No cathing yet. Moves legs and kicks like a champ.
MILWAUKEE
Amy Berg
mymurphdog@yahoo.com
Charlie was born 4/30/09 S2-S4, VP shunt with our first revision scheduled for tomorrow:( No cathing yet. Moves legs and kicks like a champ.
New York: Support by City
UPCOMING EVENTS AND PROGRAMS
Kelly LaPorte
kalaporte@gmail.com
My daughter, Madelyn, was born with Spina Bifida L4/L5, Hydrocephalus
(shunted), Partial Trisomy 9q, and Partial Agenesis of Corpus Colosum.
She is now 2 1/2 years old, and is just starting to take some steps
in her walker. She is cathed every 3 hours.
ROCHESTER, NEW YORK
Holli Rissberger
hrissberger@gmail.com
Mom to twins born May 2nd, 2009. Alex has Spina Bifida L1, shunt, cathing, dislocated hip and the joy of my life.
www.ourdoubleblessings.blogspot.com
RICHFORD, NEW YORK
Kelly LaPorte
kalaporte@gmail.com
My daughter, Madelyn, was born with Spina Bifida L4/L5, Hydrocephalus
(shunted), Partial Trisomy 9q, and Partial Agenesis of Corpus Colosum.
She is now 2 1/2 years old, and is just starting to take some steps
in her walker. She is cathed every 3 hours.
ROCHESTER, NEW YORK
Holli Rissberger
hrissberger@gmail.com
Mom to twins born May 2nd, 2009. Alex has Spina Bifida L1, shunt, cathing, dislocated hip and the joy of my life.
www.ourdoubleblessings.blogspot.com
Illinois: Support by City
UPCOMING EVENTS AND PROGRAMS
CHICAGO
Megan Meinhardt
megano2@yahoo.com
Nellie was born on April 12, 2004 with SB...unknown to us until her birth. Her defect location is L5/S1. She's doing great aside from her mobility delays. She is the light of our lives.
Blanca Jara
CHICAGO
Megan Meinhardt
megano2@yahoo.com
Nellie was born on April 12, 2004 with SB...unknown to us until her birth. Her defect location is L5/S1. She's doing great aside from her mobility delays. She is the light of our lives.
Blanca Jara
Bilingual (English / Spanish)
bejara@cookcountycourt.com
Mom to Luis Jara, SB. Not sure of the level, no cathing yet. Yes to the shunt.
Megan Meinhardt
megano2@yahoo.com
Nellie was born on April 12, 2004 with SB...unknown to us until her birth. Her defect location is L5/S1. She's doing great aside from her mobility delays. She is the light of our lives.
bejara@cookcountycourt.com
Mom to Luis Jara, SB. Not sure of the level, no cathing yet. Yes to the shunt.
Megan Meinhardt
megano2@yahoo.com
Nellie was born on April 12, 2004 with SB...unknown to us until her birth. Her defect location is L5/S1. She's doing great aside from her mobility delays. She is the light of our lives.
Tuesday, June 23, 2009
Utah: Support by City
UPCOMING EVENTS AND PROGRAMS
SPANISH FORK
Amanda Mateus
kamikazial@hotmail.com
Zach is almost 13 months old. His SB is around L2-L3. He has a shunt and has had one revision. He is moving all over the place by rolling and pushing and is learning to army crawl. He is very opinionated and knows what he wants. He is a very happy boy and a such a joy in our home.
zacharysstory.blogspot.com
SPANISH FORK
Amanda Mateus
kamikazial@hotmail.com
Zach is almost 13 months old. His SB is around L2-L3. He has a shunt and has had one revision. He is moving all over the place by rolling and pushing and is learning to army crawl. He is very opinionated and knows what he wants. He is a very happy boy and a such a joy in our home.
zacharysstory.blogspot.com
Monday, June 22, 2009
California: Support by City
UPCOMING EVENTS AND PROGRAMS
BAKERSFIELD
Jennifer
Jenniferlynnki@hotmail.com
I am a mother of three wonderful children, one of whom was born with Spina Bifida. I was shocked when I found out when I was 18 weeks pregnant. I cried for days. One thing that changed my outlook was the ability to talk to a mother who went threw what I was going thru and I got to see a child who had what my daughter did. I still have that memory 2 years later. I would love to let parents know that they are not alone, and neither are their kids.
BAKERSFIELD
Jennifer
Jenniferlynnki@hotmail.com
I am a mother of three wonderful children, one of whom was born with Spina Bifida. I was shocked when I found out when I was 18 weeks pregnant. I cried for days. One thing that changed my outlook was the ability to talk to a mother who went threw what I was going thru and I got to see a child who had what my daughter did. I still have that memory 2 years later. I would love to let parents know that they are not alone, and neither are their kids.
CENTRAL VALLEY (FRESNO AREA)
Michele Hays
countrybuyer1@hotmail.com
Jackson (3) L3-S1 VP shunt, cathing twice a day, club feet, dislocated hips, ACM II. Working on walking with a walker.
IRVINE
Scott and Karlee Leyva
karlee.m.leyva@gmail.com
Everlee 02.02.09 * SB S2-3, VP Shunt (5 revisions), Cath 3x's daily, ACII and smiles non stop!!! We have two daughters, Aubree is 3 and Everlee is almost 5 months. Everlee has SB and Hydrocephalus. She is currently on her 6th shunt and is cathed 3x's a day. Besides a few set backs she is doing awsome! We have been out of the hospital for over a month, yeah! She rocks with all of her therapy. Once we get settled in the new house I will be better about keeping our blog updated.
http://everleeannleyva.blogspot.com/
SAN DIEGO
Jacqueline Pochop
jacpochop@gmail.com
Hunter, who is now four years old, was born with SB L4-S2, Hydrocephalus w/shuntX3, ACII, club feet, g-tube, tracheostomy, and more! In addition to Hunter we have 3 daughters (10, 14, & 17) and 19 year old son. He is a pro in his wheelchair and has already told us he is going to do backflips in it; in addition to playing wheelchair basketball and baseball. He is also getting pretty good at walking with his walker and braces (AFO’s & KAFO’s). Hunter is a hero to many and an incredible inspiration and we honored to have been chosen as his parents.
Bess Moore
bessleland@aol.com
760-231-5270
Matthew Linden
matthew.m.linden@gmail.com
Father of Annabelle Lucille Linden born 8/7/8 with T5-level SB, Hydro, VP Shunt and Bilateral clubbed feet
http://www.thedawgrun.blogspot.com/
Holly Linden
holly.m.linden@gmail.com
Mother of Annabelle Lucille Linden born 8/7/8 with T5-level SB, Hydro, VP Shunt and Bilateral clubbed feet
http://pushontildawn.blogspot.com/
Erika Atkinson
e.casco@yahoo.com
Our son Nicolas has SB S2-S4 . No shunt, Walking independently, Cathing 7 per day, Reflux level 4, and we are doing everything we can to save his kidneys.
TURLOCK, CALIFORNIA
Rachelle
=e-mail to follow=
Nathan and Brianna were born March 4, 2009. Brianna has Spina Bifida (L3?), VP shunt, cathed 3x's day...she's our little miracle!
Michele Hays
countrybuyer1@hotmail.com
Jackson (3) L3-S1 VP shunt, cathing twice a day, club feet, dislocated hips, ACM II. Working on walking with a walker.
IRVINE
Scott and Karlee Leyva
karlee.m.leyva@gmail.com
Everlee 02.02.09 * SB S2-3, VP Shunt (5 revisions), Cath 3x's daily, ACII and smiles non stop!!! We have two daughters, Aubree is 3 and Everlee is almost 5 months. Everlee has SB and Hydrocephalus. She is currently on her 6th shunt and is cathed 3x's a day. Besides a few set backs she is doing awsome! We have been out of the hospital for over a month, yeah! She rocks with all of her therapy. Once we get settled in the new house I will be better about keeping our blog updated.
http://everleeannleyva.blogspot.com/
SAN DIEGO
Jacqueline Pochop
jacpochop@gmail.com
Hunter, who is now four years old, was born with SB L4-S2, Hydrocephalus w/shuntX3, ACII, club feet, g-tube, tracheostomy, and more! In addition to Hunter we have 3 daughters (10, 14, & 17) and 19 year old son. He is a pro in his wheelchair and has already told us he is going to do backflips in it; in addition to playing wheelchair basketball and baseball. He is also getting pretty good at walking with his walker and braces (AFO’s & KAFO’s). Hunter is a hero to many and an incredible inspiration and we honored to have been chosen as his parents.
Bess Moore
bessleland@aol.com
760-231-5270
Matthew Linden
matthew.m.linden@gmail.com
Father of Annabelle Lucille Linden born 8/7/8 with T5-level SB, Hydro, VP Shunt and Bilateral clubbed feet
http://www.thedawgrun.blogspot.com/
Holly Linden
holly.m.linden@gmail.com
Mother of Annabelle Lucille Linden born 8/7/8 with T5-level SB, Hydro, VP Shunt and Bilateral clubbed feet
http://pushontildawn.blogspot.com/
Erika Atkinson
e.casco@yahoo.com
Our son Nicolas has SB S2-S4 . No shunt, Walking independently, Cathing 7 per day, Reflux level 4, and we are doing everything we can to save his kidneys.
TURLOCK, CALIFORNIA
Rachelle
=e-mail to follow=
Nathan and Brianna were born March 4, 2009. Brianna has Spina Bifida (L3?), VP shunt, cathed 3x's day...she's our little miracle!
North Carolina: Support by City
UPCOMING EVENTS AND PROGRAMS
HUBERT
Lori Smith
smithnc@embarqmail.com
Daughter – Emma Grace born 11/21/2008 SB L5-S1, ACMII asymptomatic, Cathed 4xs, no shunt.
SALISBURY
Crystal Hodgson
kris52720@yahoo.com
Ethan was born 4/6/07 SB around L1, Shunt, ACMII, club foot, hips out of place, in a wheel chair, cath 3x day (going in for 9th surgery on July 5th)
HUBERT
Lori Smith
smithnc@embarqmail.com
Daughter – Emma Grace born 11/21/2008 SB L5-S1, ACMII asymptomatic, Cathed 4xs, no shunt.
SALISBURY
Crystal Hodgson
kris52720@yahoo.com
Ethan was born 4/6/07 SB around L1, Shunt, ACMII, club foot, hips out of place, in a wheel chair, cath 3x day (going in for 9th surgery on July 5th)
Severn, Maryland
UPCOMING EVENTS AND PROGRAMS
Melinda Osterhout
melinda_osterhout@yahoo.com
I have a 5 year old and a 2 year old with sb. He is L3 with a shunt. Learning to use walker and soon to get a wheelchair as well. Cathed every 3 hours.
Melinda Osterhout
melinda_osterhout@yahoo.com
I have a 5 year old and a 2 year old with sb. He is L3 with a shunt. Learning to use walker and soon to get a wheelchair as well. Cathed every 3 hours.
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